RESEARCH ARTICLE


Quality of Life of Mothers and Fathers of Children with Autism Spectrum Disorder in Jordan



Eiman A. Ahmed1, Sireen M. Alkhaldi2, *, Hamza Alduraidi3, Rania A. Albsoul1, Mohammad Z. Alhamdan4
1 Department of Medicine Community, Ministry of Health, Sabha, Lybia
2 Department of Family and Community Medicine, School of Medicine, The University of Jordan, Queen Rania Street, Amman 11942, Jordan
3 Department of Community Health Nursing, School of Nursing, The University of Jordan, Queen Rania Street, Amman 11942, Jordan
4 School of Medicine, The University of Jordan, Amman 11942, Jordan


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Creative Commons License
© 2023 Ahmed et al.

open-access license: This is an open access article distributed under the terms of the Creative Commons Attribution 4.0 International Public License (CC-BY 4.0), a copy of which is available at: https://creativecommons.org/licenses/by/4.0/legalcode. This license permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

* Address correspondence to this author at the Department of Family and Community Medicine, School of Medicine, University of Jordan, Queen Rania Street, Amman 11942, Jordan; Email: s.alkhaldi@ju.edu.jo.


Abstract

Background:

Parenting children with autism spectrum disorder (ASD) is widely identified to be associated with life-long impairment in parents’ quality of life (QoL). However, there has been little information on the QoL of parents of children with ASD in the Jordanian context.

Objective:

This study aimed to assess the QoL among mothers and fathers who have children with ASD in Jordan and to identify factors associated with it.

Methods:

In this cross-sectional study, respondents were mothers and fathers of children with ASD attending autism rehabilitation centers in Amman. Data were collected from 206 participants using a validated questionnaire. Descriptive statistics, T-test, ANOVA and logistic regression, were applied.

Results:

Overall quality of life was low (mean= 2.32). The physical dimension scored the highest (mean =2.79), and the environmental dimension scored the lowest (mean= 2.06). Results indicated that fathers and parents with low education reported significantly lower QoL scores (p = .024 and 0.001, respectively).

Conclusion:

Among parents of children with ASD, parents at risk for low QoL were recognized. Our results can be utilized to design interventions to support mothers and fathers at risk in Jordan to enhance their QoL.

Keywords: Quality of life, Parents, Autism spectrum disorder, WHOQOL – BREF, Children.